Kids gather to celebrate pediatric cancer survivors day


Cancer robbed a lot from Olivia Macchio all through the years she battled the ailment: time at school, time together with her pals, time together with her own family. But the 12-yr-old from Garden City, diagnosed with an aggressive blood most cancers called Burkitt lymphoma in 2015, stated she stayed upbeat through months of chemotherapy and repeated sanatorium stays way to the help of her friends and own family.

There became hair loss and a whole lot of worry. There became sadness and loneliness. There became medication that made her feel awful, Olivia stated Sunday on the 7th annual Les Nelkin Pediatric Cancer Survivors Day, hosted by way of the Cohen Children’s Medical Center. But there were friends and family individuals who stood together with her through the hard times, she said. There had been nurses who sang songs and confirmed her humorous videos to cheer her up. There have been even medical doctors who allowed her to hit them with a pie in the face all through a St. Patrick’s Day carnival.

“I’m satisfied to document I’m healthy now,” Olivia informed the five hundred or so humans, which include a hundred pediatric cancer survivors, who amassed on the Northwell Health at Jones Beach Theater below a gloriously blue sky for the occasion. “I were in remission for almost five years. I’m back to high school, returned to all my sports activities and sports.”

Olivia become no longer the most effective megastar on the cancer survivors day — Wonder Woman, Spiderman, Miss Connecticut and Mr. Met had been a number of the dignitaries who posed for pictures and swapped excessive-fives with younger cancer survivors. There have been inflatable slides, video games and crafts. The New York Marine Rescue Center brought turtle skulls and shells. Joe Genellaro and Kevin Darcy from the Long Island Aquarium added a snake, extraordinary cockroaches and a couple of ordinary-looking bugs called satan’s waking sticks for kids to puppy, in addition to an extraordinary pancake tortoise named Flapjack.

Dr. Jonathan Fish, a pediatric hematologist/oncologist at Cohen Children’s Medial Center who heads a application known as Survivors Facing Forward, stated it changed into crucial to honor the struggles and accomplishments of young cancer sufferers and their households. He said the pediatric most cancers survival price is 80 percent, a figure that has dramatically multiplied in latest a long time. Many, he stated, will want lifetime clinical interest, although the cancers they survived do now not return. Chemotherapy and radiation remedies, he said, can have an effect on their health for life, and Fish stated his purpose is to help his sufferers not handiest continue to exist, however thrive.

“It’s hard sufficient being a teen or a preteen while not having to lose your hair or face your personal mortality,” Fish stated.

Annette Pablakis of Smithtown, who became recognized with a rare kidney cancer referred to as Wilms tumor whilst she become eleven years vintage, said she struggled for a long term with tension stirred with the aid of fears her cancer might return. She stated anti-anxiety medication has stepped forward the exceptional of her life.